Local and global citizenship in the haemophilia community in NZ
(University of Auckland)
Paper short abstract:
An exploration of the relationships between the sensory experiences of haemophilia and enactments of citizenship.
Paper long abstract:
The sensory experiences of haemophilia are multiplex. Shared experiences of the condition, its treatment and the consequences of that treatment within the nation and across nations motivate a variety of enactments of citizenship. This paper is based on 15 years of fieldwork within the haemophilia community in New Zealand. It explores the relationships between the sensory experiences of haemophilia and citizenship in relation to the themes of this panel.
Senses and citizenships: contestations over national and global identities, resources, and forms of belonging